The following dataCan refer to: (1) the demographic data used in the Data Linkage process; or (2) information pertaining to services provided to people or their clinical information (available only from Data Custodians, including via CARES). collections make up the 'core' linkages of the WADLSWestern Australian Data Linkage System: The Western Australian system used to connect available health and other related information for the WA population. This incorporates database tables holding demographic data and linkage keys, and the bespoke tools used by Linkage Staff to process, create, store and retrieve them.

DatasetA collection of similar items of information, for example a WA Births dataset might contain many thousands of pieces of information, each of which contains the name, place, and date of birth for WA people. Name

Custodian Contact Details

Year Range

Comments

Birth Registrations janine.alan@health.wa.gov.au  1974 - current
  •  Linked monthly
  •  All births registered in WA
  •  Information about mother, father and baby
WA Cancer Registry richard.trevithick@health.wa.gov.au 1982 - current
  • Since 1982
  • Linked on a monthly basis
  • Includes all cases of cancer and some other neoplasm types
  • Includes details of non-WA deaths where known
  • Information supplied usually includes demographic data and one or sets of tumour details
  • Case-based, not event-based structure
Death Registrations janine.alan@health.wa.gov.au  1969 - current
  • Linked monthly
  • All deaths registered in WA
  • Coded cause of death data is updated annually and can be delayed years after the event if under investigation
WA Electoral Roll
janine.alan@health.wa.gov.au  1988 - current
  • Linked quarterly
  • Only current recordA single data item sourced from a data collection, which typically refers to one event, instance or registration (e.g. hospital discharge, birth registration, car crash), although in rare cases can refer to more than one. The specifics of what constitutes a record varies between data collections, depending on how the data is recorded and stored. Each record contains: (1) demographic information (names, addresses, etc), that DLB uses to link the data, and; (2) service information (diagnoses, procedures, etc) that are used by Applicants to perform analysis. released on extract
  • Used primarily for linkage purposes and selection of controls.
Emergency Department Data Collection (EDDC) wei.ang@health.wa.gov.au  2002 - current
  • Linked on a weekly basis, with catchup linkages every 6 months
  • Contains data on emergency department activity in WA’s public hospitals as well as ED activity in private hospitals under contract with the WA Government.
  • Include 4 systems:
    • Emergency Department Information System (EDIS) - used by all EDs in metropolitan public hospitals and the Joondalup Health Campus
    • Health Care and Related Information System (HCARe) - used by all rural public hospital (except Bunbury Regional Hospital)
    • The Open Patient Administration System (TOPAS) - used by Bunbury Regional Hospital
    • lThe Electronic Patient Administration System (ePAS) - used by Peel Health Campus
Hospital Morbidity Data Collection (HMDC) vikki.mirosevich@health.wa.gov.au 1970 - current
  • Linked monthly
  • Includes all hospitals in WA (public and private)
  • Comprised of around 25,000,000 electronic inpatient separations records dating back to 1970
Mental Health Information System (MHIS) jo.harman@health.wa.gov.au July 1966 - current
  • Linked monthly, since June 2015, annually prior to that. 
  • Patient based system (every patient is allocated a unique number)
  • Psychiatric episodes can be inpatient (public and private) and outpatient (public only)
  • Inpatient data is sourced from:
    • Community Accommodation Support Program Hostels
    • Community Residential Facilities; and
    • Acute general hospitals
  • Outpatient data is sourced from:
    • Designated Psychiatric Inpatient Units
    • Psychiatric Clinics
    • Triage Services
    • Community mental health centres
    • Psychiatric Day centres
    • Outreach programs; and
    • Rehabilitation programs
Midwives Notification System (MNS)
maureen.hutchinson@health.wa.gov.au 1980 -  current
  • Linked monthly
  • Between 25,000 and 35,000 births per year (including stillbirths)
  • Includes births of at least 20 week’s gestation or at least 400 grams in weight if gestational age is not known 
  • Information is specified by Form 2 (Notification of Case Attended - NOCA) regulated for the WA Health Act 1911
  • Before 2005, almost all reporting was by paper form submission. Now almost all information is reported using clinical applications called Feeder Systems, current WA Feeder Systems are: