Access Requirements

Access to Western Australian linked dataCan refer to: (1) the demographic data used in the Data Linkage process; or (2) information pertaining to services provided to people or their clinical information (available only from Data Custodians, including via CARES). is granted to researchers who:

  • Have obtained approval from the relevant Data Custodians to ensure the data requested is appropriate for the purpose of the research.
  • Have obtained approval from the relevant Human Research Ethics Committee/s (HRECs) to conduct their proposed research.

Strict protocols must be followed to ensure the confidentiality and security of linked data. Wherever possible, research should be conducted using unidentifiableRelated to the identifiability of a dataset/data item; where the identity of a person/organisation is not immediately obvious and it is not reasonably possible to reidentify a person/organisation using other sources of information. data.

Applicants must read and adhere to the DLB Access and Charging Policy and are advised to speak to the relevant Data Custodians before applying to the DLB for data.

The following policies must be read and adhered to for requests for Department of Health data:

 

Conditions of Use

  • Data provided can only be used for the specific project that has been approved. It must not be combined with other datasets or used for other projects without approval from the Data Custodians and DoH HRECDepartment of Health Human Research Ethics Committee. A group that provides governance over Department of Health personal health information and its use in research. See also http://ww2.health.wa.gov.au/Corporate/Articles/N_R/Research-ethics.
  • Only the approved personnel listed in the Application for Data may have access to the data extract.
  • Data extracts or client lists for linkage must never be sent via email.
  • Data should always be encrypted when transported.
  • When stored on a computer, disc or other media, data files must always be password protected.
  • All data to be linked by the DLB should have a unique identifier assigned to each client recordA single data item sourced from a data collection, which typically refers to one event, instance or registration (e.g. hospital discharge, birth registration, car crash), although in rare cases can refer to more than one. The specifics of what constitutes a record varies between data collections, depending on how the data is recorded and stored. Each record contains: (1) demographic information (names, addresses, etc), that DLB uses to link the data, and; (2) service information (diagnoses, procedures, etc) that are used by Applicants to perform analysis..
  • All projects require at least one investigator based in WA to ensure results are distributed to the WA community.
  • All resulting draft manuscripts, reports and presentations must be sent to the DLB and Data Custodians before publication, allowing 14 days for comment.
  • All publications must acknowledge the Data Collections and DLB (FAQ. no. 10), and all final copies must be sent to the DLB as they become publicly available.